Frustration . . .

The standing table

Claire is such a trooper!!

Karlee had the last 24 hour period with her and said that she has done very well, but seems to have gained some additional awareness that her legs are just not functioning when she wants them to. Karlee said that during PT today she grew very frustrated when she was sitting up on the balancing table they have in the gym because she couldn't just get up and walk away.

Claire, really, just wants none of this hospital at this point - and rightfully so. She is so used to being free to roam and go where she pleases that this new inability just makes her mad. She never liked being told no in the past, now her legs are essentially telling her "no" and it just doesn't bode well with her.

When I arrived at the hospital today Claire was sound asleep after having been exhausted by PT and pain meds. She had some additional visitors during the day; Karlee's friend Becky and Becky's sister and kids stopped by (the kids are 12 and 15 years old). Claire also had one of her teachers from Accel School come by to say hi.

*NOTE: I point out that the kids were 12 and 15 because the hospital has, just today, instituted a rule that no child under the age of 12 is allowed beyond the front desk - No Exceptions - for fear of spreading unnecessary colds, flus and diseases. Understandable - but now even Jacob cannot visit his own sister in the hospital. :(



Our dog Sue



After Claire woke up this evening she was grumpy - and the lady who came in shortly after Claire woke to do some breathing therapy with her didn't help. She got so grumpy that after the nurse left she was directing it toward me. So I sat down on the bed and asked her if she just wanted to go home, at which point she cried and I held her until she was done. I explained to her that I want to go home too, and I want her home, and so does Mom and Jacob and Sue (our dog), but that in order to go home we need to keep working hard and following the nurses orders. She seemed to understand, took a breath and then had an entirely more positive attitude.

She also was hungry (she had slept through dinner time), so I ordered up a turkey sandwich, jello, milk and 2 oreo cookies for her, which she devoured. Poor kiddo was hungry!! She and I then watched Despicable Me and she played on the computer. Until she fell back to sleep for the night.

God bless everybody. Keep her in your prayers!